In July I wrote a blog about ‘Thinking a head’. I was contemplating baldness, which in my case I considered would probably occur in January as this was when I was expecting to be admitted to hospital for high dose chemotherapy followed by a stem cell transplant. Little did I know at that point, that […]Read more "Hair today, gone tomorrow"
Last week I saw my consultant and he confirmed that the current treatment I was on (CTD for those that know what this means) like VTD hadn’t succeeded in reducing my light chains so we are no further forward. The next step is to be DT PACE, a fairly aggressive regime for those of us […]Read more "An Unexpected Christmas Present"
What boosts your confidence? Doing well at work? Respect of colleagues? Supportive friends? Achieving a new skill? Or new clothes, expensive shoes and a great haircut? For me it’s all of them, different things at different times; cultivating self-esteem is all about feeling good as well as looking the best you can. Like many people […]Read more "Confidence"
A few weeks ago, I attended a Myeloma Information day in Birmingham. It was good to meet others with Myeloma and to be reminded that there are lots of other people in this ‘boat’ along with me. The one thing I didn’t like was wearing a badge all day that said ‘patient’. I’m not keen on […]Read more "The New Normal"
I can’t believe I have just spent the last twenty minutes watching the fish in my pond and contemplating whether it’s preferable to have diarrhoea or constipation! Fortunately, I have never had to entertain either of them for any length of time previously but since being diagnosed with cancer I have been in a perpetual […]Read more "Dilemmas"
For years September, has meant the start of a new year for me and the start of new beginnings; I have never made New Year resolutions for January, any changes I want to make usually start in September. September has meant the children starting school and me going back to work; as a youth worker […]Read more "September and new beginnings"
Peripheral what I hear you say! No I hadn’t heard of it either until it became my frequent companion. The NHS states that the ‘peripheral nervous system is the network of nerves that lie outside the central nervous system (the brain and spinal cord)’. They go on to list what the delightful symptoms of peripheral neuropathy […]Read more "The joys of Peripheral Neuropathy"