Roller coaster week

It’s Friday and the week seems to have gone in a flash with a lot happening along the way. Monday I claimed benefit for the first time in my life: I claimed Employment Support Allowance (ESA). For those of you outside the UK this is a benefit, paid by the government for people who are […]

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Thinking a ‘head’

OK, so I try not to think too far ahead and worry about things until I really have to worry about them, but with this cancer planning is sometimes essential. The Myeloma UK magazine Myeloma Matters was out this week and there was an article in it about Body Image and Myeloma. I don’t think […]

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Holiday withdrawal symptoms

We’ve all had them! The holiday blues when we come back home and that lovely holiday seems a distant memory already, our beautiful home doesn’t seem as beautiful any more and added to that it’s raining. OK, so today I am feeling holiday withdrawal symptoms but not the ones we get when we come back […]

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Good news, I think

Yesterday was treatment day back at the hospital. I had the usual Velcade plus Zometa which is to strengthen my bones. I am lucky in so far as I don’t have any damage to my bones yet so this is more a preventative measure for me, as per the NICE guidelines. The Zometa was intravenous […]

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The spectral cancer

Someone on the Myeloma UK website wrote something for Myeloma Awareness week which really rang true for me. They said: “Most of the time it’s an ‘invisible cancer’. People with myeloma look well enough and people seem to forget or not realise the extent of it, even when the underlying issues are almost too numerous […]

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