It’s Friday and the week seems to have gone in a flash with a lot happening along the way. Monday I claimed benefit for the first time in my life: I claimed Employment Support Allowance (ESA). For those of you outside the UK this is a benefit, paid by the government for people who are […]Read more "Roller coaster week"
Being diagnosed with cancer can be one of the most difficult situations any of us have to face. It can be a tremendous shock and cause us to be fearful of the future, affecting every aspect of our lives, including our ability to have or keep a job. Our work often defines us, how often […]Read more "Work, work, work ,work, work."
OK, so I try not to think too far ahead and worry about things until I really have to worry about them, but with this cancer planning is sometimes essential. The Myeloma UK magazine Myeloma Matters was out this week and there was an article in it about Body Image and Myeloma. I don’t think […]Read more "Thinking a ‘head’"
It’s Friday, which is never a good day for me. It never ceases to astound me with this cancer how different you can feel from one day to the next. For me ‘That Friday Feeling’ has taken on a whole different meaning to the one it had before! Up until now I have not attempted […]Read more "What a difference a day makes"
We’ve all had them! The holiday blues when we come back home and that lovely holiday seems a distant memory already, our beautiful home doesn’t seem as beautiful any more and added to that it’s raining. OK, so today I am feeling holiday withdrawal symptoms but not the ones we get when we come back […]Read more "Holiday withdrawal symptoms"
Yesterday was treatment day back at the hospital. I had the usual Velcade plus Zometa which is to strengthen my bones. I am lucky in so far as I don’t have any damage to my bones yet so this is more a preventative measure for me, as per the NICE guidelines. The Zometa was intravenous […]Read more "Good news, I think"
Someone on the Myeloma UK website wrote something for Myeloma Awareness week which really rang true for me. They said: “Most of the time it’s an ‘invisible cancer’. People with myeloma look well enough and people seem to forget or not realise the extent of it, even when the underlying issues are almost too numerous […]Read more "The spectral cancer"